NiDB's HIPAA compliance
NiDB attempts to ensure HIPAA compliance, but is not completely compliant with all aspects of data privacy.
There are 18 types of personally identifiable information (from Health and Human Services website). Data that can be stored in NiDB is highlighted.
Names
All geographic subdivisions smaller than a state, including street address, city, county, precinct, ZIP code, and their equivalent geocodes, except for the initial three digits of the ZIP code if, according to the current publicly available data from the Bureau of the Census:
The geographic unit formed by combining all ZIP codes with the same three initial digits contains more than 20,000 people; and
The initial three digits of a ZIP code for all such geographic units containing 20,000 or fewer people is changed to 000
All elements of dates (except year) for dates that are directly related to an individual, including birth date, admission date, discharge date, death date, and all ages over 89 and all elements of dates (including year) indicative of such age, except that such ages and elements may be aggregated into a single category of age 90 or older
Telephone numbers
Vehicle identifiers and serial numbers, including license plate numbers
Fax numbers
Device identifiers and serial numbers
Email addresses
Web Universal Resource Locators (URLs)
Social security numbers
Internet Protocol (IP) addresses
Medical record numbers
Biometric identifiers, including finger and voice prints
Health plan beneficiary numbers
Full-face photographs and any comparable images
Account numbers
Any other unique identifying number, characteristic, or code, except as permitted by paragraph (c) of this section [Paragraph (c) is presented below in the section “Re-identification”]; and
Certificate/license numbers
The following pieces of information are stored on NiDB. Not all are required.
| Field | Required? |
|---|---|
Name (First and Last)
Required. Field cannot be blank, but does not need to be the actual participant's name.
Address (street, city, state, zip)
Not required
Phone number
Not required
Email address
Not required
ID (unique ID)
Required. But this is not a medical record number
Dates (dates of service, date of birth)
Required. Age-at-study is calculated from date of birth and date of service.